SO much has happened since my last post and I am dancing for joy right now. Where to begin…..
My lifelong, dear friend….no she is more like a sister than anything, got married! I was so fortunate enough to be able to travel to Atlanta to attend her wedding. My friend Tammy and I were joined at the hips growing up. Her parents helped raise me and my parents helped raise her. If anyone knows me inside out, she does! So, missing her wedding was not an option for me. Our problem was Hannah…..there was NO way she could make the trip the way things were going and there was no way that she could attend a wedding as she cannot be around that many people with all the sickness and germs floating around. So, the original plan was for me to fly up to Atlanta on Friday and back on Sunday. Dennis and Hannah were just going to stay at home. Dennis had the whole next week off and we wanted to take a vacation but staying in a hotel for a week is not an option due to germs and money (for the record I am a hotel snob and will only stay in NICE places….no Motel 6’s for this chic). We wanted to spend a few days in Atlanta with Tammy and her family and then head on over to Birmingham for 5-6 days but we just knew we couldn’t do that with Hannah. So, the plan was for me to go, come home and have a staycation here in Jacksonville….BLAH! Well, about a week or so before I was to leave Hannah started a new treatment protocol with steroids and a new antibiotic to treat PANDAS. The first 2 days of the new treatment was a NIGHTMARE….she raged 24/7, was sad and her anxiety was through the roof! But, on day 3 something miraculous begin to happen…..she was calm, happy and we were seeing positive changes. We were amazed! So, then we decided to ALL go to Atlanta. The great thing about Atlanta is that Tammy’s sister Michelle and her husband Mike have room for us and always extend to us a place to stay. Long story short…..we drove to Atlanta on Friday, December 5th and stayed until Saturday, December 13th. We had the best time! Hannah was happy, loving……joyful in fact! We were astonished! I was able to attend Tammy’s wedding and Dennis and Hannah just hung out at Mike and Boo’s (Michelle’s nickname) house. Let me brag on my husband a second here…..he was amazing! He did everything with Hannah the entire week giving me a much-needed break! He played with her, bathed her, put her to bed, and rode the golf cart with her (Hannah’s favorite thing because he lets her drive). I was able to visit with my 2nd family, shop, attend a beautiful wedding, shop, laugh, shop….did I mention shopping? HA! It was amazing! It was a relaxing, refreshing and glorious trip! What a blessing to have a week like that after the past year and a half we have had! On top of everything Boo got some great pictures of us…..Hannah smiled like she hasn’t smiled in MONTHS. Here are some pictures from our trip:
One of my favorite pictures from the wedding! Love you “T”
Me, our friend Wendy and Boo! Love these ladies!
Hannah driving the golf cart around the golf course where Mike and Boo live! The child will NEVER get a license….she is a maniac driver! We were all holding on for dear life! HA!
Boo and Hannah! These 2 love each other so much!
My silly girl!
OH THIS FACE!! HAPPY, HAPPY, HAPPY! Thank you Lord!
We even got to see dear friends while we were there. Barry and Nancy are so dear to my heart. We knew them from our church in Jacksonville and they now live in North Georgia and came to Mike and Boo’s house to visit us since we couldn’t take Hannah out to a restaurant. It was such a nice visit with them! I actually cried when I saw Barry as he was always my buddy at church for years! Nancy is one of my faithful blog readers and has been so sweet, generous and loving to me! I would put a picture on here of all of us but you know how Dennis feels about his picture on my blog!
So…..now here is the update on Hannah and her treatment plan. We got home on Saturday and the new medications ended on Sunday. It was a 21-day trial period. I wasn’t sure what the next step was going to be. I texted her Pediatrician on Sunday and she said that we needed to talk with our PANDAS Specialist as this is “uncharted waters” and we needed her direction. Keep in mind, I was out of medication and if we were going to get to stay on it, I didn’t want Hannah to miss a dose. Our Pediatrician told me that she would email the PANDAS Specialist on Monday and I told her I would call. I wasn’t sure if either of us would hear back yesterday but we both did! I was able to talk to Dr. T. and she emailed Dr. K. and together they came up with this new treatment protocol and I was able to pick it up last night before Hannah went to bed so she didn’t miss a dose! That, dear readers, was GOD!
We don’t know what the future holds for Hannah. We don’t know how long this medication will work. We know it isn’t a cure; just a treatment but let me tell you this…..God has heard our prayers and He has answered them with this and I am so very thankful! Hannah’s immune system is still not good and we have to be careful how she is exposed but with this medication our little girl plays again in her room for hours on end. She is happy; I hear laughter and singing out of the blue for no reason. She is sweet, kind and loving….no anger, no aggression and the most important….NO RAGE! Her anxiety is much lower and no tics! Her OCD behaviors are still going strong but you know what…..I can deal with that! Heck, I have many OCD tendencies myself! So, right now our home is peaceful for the first time in MONTHS and I am thanking the Lord for this Christmas Miracle!
I would ask that you pray with us….pray that this medication will continue to be effective with no bad side effects. On this medication Hannah will need lab work and EKG’s done every 6 weeks as it can cause heart issues. Our doctors are on top of it and know what to look for. That is the downside of this treatment protocol but you have to weigh the pros and cons and right now the pros outweigh the cons. If this mediation does create more heart issues (which Hannah definitely is at risk for and doesn’t need) then we will have to make changes. So, our prayer is that God will protect her heart and she will have no added problems.
Sorry for the long update but I had so much to say….here are a few more “HAPPY” pictures for you to enjoy! Merry Christmas my sweet blog readers! I am thankful for each of you!
Love the sweet look in her face!
On the golf course…..
There are no words to express how much I love this little girl! Thank you Lord for allowing me to be her mom!
Until next time……..